The Learning Disability Mortality Review (LeDeR) Programme
The Learning Disability Mortality Review (LeDeR) Programme, is a national programme that has been set up to drive improvement in the quality of health and social care service delivery for people with a learning disability. It aims to look at why people with learning disabilities die much earlier than the general population.
The purpose of the programme is to help:
- Identify the potentially avoidable contributory factors related to deaths of people with learning disabilities.
- Identify variation and best practice in preventing premature mortality of people with learning disabilities.
- Develop action plans to make any necessary changes to health and social care service delivery for people with learning disabilities.
The expectation is that every death of a person with a learning disability aged 4 years and over will be reviewed. The reviews will be carried out by local qualified social care and/or health professionals. These professionals will be provided with additional training in order to complete and evaluate the review. This role will have a particular emphasis around engagement with family members/ carers. There will also be an examination of records and consideration will be given to the individuals’ pathway of care/ support leading up to the person’s death.
In Hertfordshire, the programme commenced on the 1st April 2017.
In the event of the death of a person with a learning disability, please notify the LeDeR programme – Bristol University via www.bristol.ac.uk/sps/leder or phone 0300 777 4774.
If you require further information about the programme please contact Tracey Brennan, Local Area Contact for Hertfordshire: Tracey.brennan@hertfordshire.gov.uk
