| Resource name | Resource details | Resource link |
|---|---|---|
| ‘About my friend: for friends of people with Down's syndrome and dementia’ | Karen Dodd, Vicky Turk and Michelle Christmas. A picture booklet that outlines the dementia process and helps people with a learning disability understand what happens when a friend gets dementia. | Click here |
| ‘Books Beyond Words’ | Royal College of Psychiatrists - A series of picture books developed for individuals with a learning disability. | Click here |
| Community Learning Disability Nursing service website | There is a range of easy read leaflets and videos on the website on lots of health topics | Click here |
| Compassionate Communities East | Website set up to be a resource to those interested in end of life and how to support others to have a good end of life experience. | Click here |
| Distress and Discomfort Assessment Tool (DisDAT) | The DisDAT, or Disability Distress Assessment Tool, is a 5-minute tool used to identify distress cues in individuals with severely limited communication abilities. | Click here |
| End of Life Planning Toolkit (Victoria & Stuart Resources) | This toolkit was created together with people with learning disabilities, families, learning disability support staff, and healthcare professionals. It includes resources and approaches to support staff with end-of-life care planning with people with learning disabilities. | Click here |
| ‘Let’s Talk About Death’ | Karen Watchman (2004). An easy read booklet discussing funerals and death. | Click here |
| ‘Making a Will’ | This film for people with learning disabilities helps a person think about what may happen to their money and possessions after they die. | Click here |
| Marie Curie Easy Read Leaflet - Living with an illness you will probably die from - How to keep comfortable, healthy and happy | Available free to be downloaded or viewed on a computer. This easy read booklet is for people living with an illness that they will probably die from. This booklet uses easy words and pictures to make the information easy to understand. | Click here |
| Marie Curie Easy Read Leaflet - Living with an illness you will probably die from - Who can help? | Available free to be downloaded or viewed on a computer. This easy read booklet is for people living with an illness that they will probably die from. It tells you about who can help you. This booklet uses easy words and pictures to make the information easy to understand. | Click here |
| Marie Curie Easy Read Leaflet - When someone dies - Feelings you might have | Available free to be downloaded or viewed on a computer. This booklet is to help people after someone dies. It tells you about feelings you might have and things that might make you feel better. This booklet uses easy words and pictures to make the information easy to understand. | Click here |
| My Future and End of Life Plan | Based on the ‘What If’ document, this is an easy read planning tool to think ahead and help conversations about the future. | Click here |
| Purple All-Stars YouTube channel | There are lots of accessible videos about a range of health issues. | Click here |
| Talking Mats | Accessible information through pictures, symbols and signs. | Click here |
| TV Show Pilot | Many people with learning disabilities may understand information better through watching it on a TV show. This website brings together some TV shows and clips about people with cancer or a terminal diagnosis that may help if trying to support someone to understand. | Click here |
