Improving End of life care for people with learning disabilities and Autism in Hertfordshire – A resource for family and paid carers
“Dying well wherever you are and whatever your background or circumstances are fundamental aspects of human dignity. As part of a compassionate humane society, we need to do everything we can to make sure that people who are facing their last months, weeks and days of life receive the best possible palliative and end-of-life care.” – NHS England
“You matter because you are you and you matter to the end of your life. We will do all we can, not only to help you die peacefully but also to live until you die. How people die remains in the memory of those who live on” – Dame Cicely Saunders
Invisible
Introduction
Planning Ahead
- Health Surveillance
- Annual Health Checks
- Health Action Plans (HAP)
- Gold Standards Framework (GSF)
- Breaking bad news
- Information Plans
- Recommended summary plan for the emergency care and treatment (ReSPECT) forms
- Cardiopulmonary Resuscitation (CPR)
- The Mental Capacity Act and making decisions during End of Life
Support - Who can help with end-of-life care?
My Plans and Communications
Recognising Symptoms and Management
Within the last year of life
Actively dying
Who can help?
After Death
Appendices
This section includes all the supporting documents and information that may be required, as outlined within the previous sections.
- Appendix 1 – Telephone contacts
- Appendix 2 – Checklist for paid carers to facilitate a good death
- Appendix 3 – Pain Profile example
- Appendix 4 – Contacts of Community Learning Disability Nursing service
- Appendix 5 – Accessible resources
- Appendix 6 – Carer and professional resources
- Appendix 7 – Organisations that offer training in delivering end of life care
- Acknowledgements
Get in touch
Send us a message and we will get back to you as soon as we can, or you can give us a call on 01707 536 020